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Stephen: Letters of Courage and Hope, Expanded Edition, by Stephen Michael Nelson
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Forward by Susan Perenti and Patch Adams.
This Expanded Edition of Stephen: Letters of Courage and Hope contains Stephen's first and only words. They are a beautiful reflection of a 14-year-old boy's life. Stephen's reflections are full of love, laughter, courage, hope, compassion and miraculous strength. They uncover simple truths about love, pain, joy, disease, laughter, death, eternal life, forgiveness and living with angels. They display life without prejudice, bitterness or despair. They express his passion for life itself, for friends, family, nature, music, reading and other people.
Stephen's multiple physical challenges could not silence him. In September of 2000, he began using a makeshift writing machine consisting of a tape recorder, a pillow speaker, and an adapted switch. In his mother's arms, working through great physical pain, he would listen as the recorder slowly announced the letters of the alphabet, one letter at a time. When he heard the letter that he wanted, he touched the switch. The tape stopped, announced the letter, recorded it, and started over again. Fourteen years of silence were interrupted, one letter at a time. This book contains over 900 hours of Stephen's words.
Stephen died peacefully in his mother's arms, on June 1, 2001. He completed his life work to:
Show the whole world that our love is what's right.They will hear my own voice in the words that I write.
Go tell the people for me mom.
Take my words in your heart.
Then they will know our love is what's right.
-- 4 hours (May 26, 2001).
The Stephens Hope Foundation was formed to mentor caregivers, create networking channels offering education and support, educate the general public about the value of people with differences, acknowledge creative caregiving accomplishments, and write, publish, and promote the stories of our lives.
- Sales Rank: #3585135 in Books
- Brand: Stephens Hope Foundation
- Published on: 2002-02-01
- Original language: English
- Number of items: 1
- Binding: Paperback
- 138 pages
- Great product!
Review
If we love unconditionally as Stephen does, regardless of our outward appearance, prejudices would cease. If we would try as hard as Stephen has to find a way to express our hearts, violence would end. If every parent and child would forgive as Chrissy and Stephen have, peace would result.
--Senator Richard J. Durbin About the Author
Stephen was born in Minneapolis, Minnesota on August 5th, 1986. Sometimes angels come to earth dressed in human wrappers. Stephen must be an angel.
He graced earth weighing only two pounds. His earthly existence was challenged by a myriad of physical complications due to his premature birth. Lung disease, epilepsy, cerebral palsy, cortical blindness, and autonomic nervous system disorder accompanied him, yet he grew to five feet tall and one hundred pounds at age fourteen.
Complications of pancreatitis, a ruptured diaphragm, sepsis, pertussis, pneumonia, gastic cellulites, myocardial infarction, stroke, xanthramonas multiphillia, kidney stones, and liver failure slowed him down but didn't suddenly end his life as was "prescribed" by medical experts. His spirit soared with laughter as he endured these enormous physical challenges. He loved life.
During his fourteen years on earth he caught a fish, rode in an hot air balloon, rode the waves in the ocean, played baseball with Sammy Sosa, had two mothers who loved him, sang "Piano Man" with Billy Joel, prayed with evangelist Benny Hinn, danced with Jimmy Buffett, played drums at a pow-wow, learned how to ride a "bike," had a book written about him that is used in congressional testimony, changed policy with elected officials, got a puppy, was kissed by Cinderella, sang with Attorney General Ashcroft, camped in a tent, composed a song, defied the odds, slept in a houseboat, and wrote this book one letter at a time.
Stephen must be an angel.
Most helpful customer reviews
1 of 1 people found the following review helpful.
Letter of Hope for Every Heart
By A Customer
Each time I go back and read one of Stephen's poems I am reminded of the joy, wonder, love and hope that surrounds us every day. This young man was truly a gift of pure love. For every family who has a special needs child, I recommend this book. For every family that would like to help their children understand the person inside "the package" and see the heart, mind and soul of a special needs child, I recommend this book. For every person who has known that physical limitations cannot measure the depth of a soul, I recommend this book. For every person who has doubted and questioned if a mind, heart and soul exists inside a body wracked with physical limitations, I recommend this book. Read this book in conjunction with his mother's "Eagle Doctor: Stories of Stephen, My Child With Special Needs" to understand their path together and the miracle of their lives.
1 of 1 people found the following review helpful.
A Glorious Celebration of Love and Life...
By J. A. Ericsson - Publisher
The beautiful poetry of Stephen Michael Nelson will capture your heart and enrich your faith. His words reflect a young man's dreams and aspirations unaffected by his lifelong contest against the physical ailments of cerebral palsy, epilepsy, asthma, and heart disease. Stephen reaches out to all of us with an offering of love, and a never ending amount of energy to fulfill life's dreams. It is obvious that he had no obstacles or limitations, and that we should not either. This book is a must read... as it is a glorious celebration of life and love.
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